Sleep seizures? Sleep myoclonia? Sleep twitches? Sleep apnea? Sleep epilepsy? Narcolepsy?…
Hi. I´m uploading this video in an attempt to find someone with the same problem. I have a sleep disorder. I have these sleep twitches/myoclonia all throughout the night in my sleep. They keep me from having deep, restfull sleep. I only get stage 2 sleep. I wake up exhausted every day for years now. I´ve been diagnosed with sleep apnea, narcolepsy, possible sleep epilepsy and depression. No PLMD. Each sleep study has shown a different result, I´m not even sure if I have sleep apnea or not. I get the jerks even when I use my CPAP. I´d appreaciate it if any patient or Doctor who´s had/treated this same problem or similar would contact me. My e-mail address is sjhon_fabio@hotmail.com. I´m clueless on what to do now.
Tagged with: Apnea • epilepsy • myoclonia • Narcolepsy • seizures • Sleep • twitches
Filed under: VIDEOS on SLEEP APNEA
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Hey I got the same problem I have seizures during my sleep and is a form of epilepsy that only happens during sleep, there are several ways u can stop it, first is seizures during sleep mainly happen when ur sleep deprived so if u can fix ur sleep pattern u’ll find u’ll have less seizure but also with the sleep apnea seizures can happen from lack of oxygen to, I had to get my tonsils out to get more oxygen an since then I only have a seizure when I’m sleep deprived hope this helps
You probably tried this already but turning off and unplugging everything electrical might help. I know it sounds silly but some people are extremely sensitive to electric and electromagnetic fields. Since our brain communicates with our bodies via bio-electric impulses it is possibly an interference you experience. Some people even buy special equipment to measure electric, electro magnetic or sometimes even geo magnetic fields and place their beds accordingly.
May be sleep apnea. Get a sleep study done.
they said it was sleep myoclonia, but not epillepsy. i´ve never had a day time seizure, but i´ve always had sleep issues. I have sleep apnea and reflux, so those affect my sleep. i´ve never thought of something else added to the ecuation, but those jumps are so bad sometimes, and unusual. both my parents had a brother with epillepsy though, i don´t know if epillepsy is hereditary. if you wanna write, my e mail is sjhon_fabio@hotmail.com
Hey!!! I didn´t see your message until today. I already took one EEg and even one videotelemetry to check for night time seizures/sleep epilepsy and it was ruled out. But now I read all these posts about people testing negative for epilepsy several times and tehn turning out to finally have epillepsy at their last test!!! I don´t know what to do about it, i forgot about epillepsy after that, but the truth is i sltill sleep very poorly and keep having all these weird jerks
my daughter has a similar condition and has been diagnosed with frontal lobe epilepsy. she currently takes oxycarbazepine which helps. 3 normal eeg ad 1 abnormal. sleep eeg was also normal. she is always very sleepy the next day. good luck!!
@hcim71 i don´t have periodic legs movement disorder
looks like the movment is coming from below the cam…your legs perhaps. Periodic Limb Movement Disorder. This can be verified at a sleep lab.
i will contact you via email, regards tracy
hi, i have pretty much the same problems as you except i dont think my face twitches quite so much, but the rest of me does. i had an eeg which was neg. now my dr says im having non epiltic seizures in my sleep due to stress, im due to have yet another sleep study to confirm this. i to feel so tired all the timeand like you have done for years. thanks for posting your vid im glad im not alone. all the best
No, I never sleep normally. I wake up many times a night due to the seizure activity. The seizure medication helps me sleep a little better as it normalizes things somewhat, but not completely. I need to have an add on medication. The twitching in itself can be a seizure all together. One or two eeg’s could tell you nothing, you sometimes need multiple EEG;s to find out things. I had 6 normal EEG’s before I started having abnormal ones.
Thanks for replying. So sorry to hear that,.. but do you get to actually live a normal life? I mean do you sleep well? I live so tired I´m already depressed. I hink they wont prescribe any prolonged EEG test. My sleep deprived EEG and brain MRI were negative. I had 2 uncles with epilepsy though. So, sleep twitches can actually be another symptom of night time seizures (epilepsy) hah? Does your medication for epilepsy make you sleep any better?
I have sleep myoclonus and seizures in my sleep due to possible Epilepsy. Have you had a sleep study done? Or a prolonged EEG study? If it occurs nightly you might wanna look into an Epilepsy Center to get it checked out with your brain waves. I have myoclonic seizures, grand mal seizures, and coplex partial seizures that occur out of sleep, but I also twitch throughout the whole night.
Hello,
I have the same problem. It started about 2 weeks ago. My boyfriend was waking me up so we could get the kids ready for school. I could hear him and I tried talking to him but my speech was slurred. I tried really hard but I couldn’t move. He said my eyes rolled back in my head and mouth and hand was twitching. I had a MRI and cat scan and both came back normal. They put me on an anti seizure medication called keppra. Today I had my EEG don and the DR. Said they found two points in my lower left lobe of my brain that has too much electrical charge which is causing me to have seizures. I keep stressing to them that I only have the seizures in my sleep or when I feel completely fatigued. Just a few minutes ago I was talking to a friend of mine and he told me narcolepsy can cause you to have seizures so I am going to ask the DR. Can I be tested for narcolepsy. This is really stressful because they are not connecting the dots, if I’m telling you this is the only time it happens then there must be a connection. Well I wish everyone well with their treatment. Please post any new developments that may be helpful and I will do the same.